We got pregnant with our second child in September 2007. That December changed our lives forever. We were told that we were pregnant with a little girl, and if she made it to birth, she would have multiple, complexheart defects. Our little girl arrived on April 12, 2008 at 11:30am, 10 weeks early, weighing 3lbs 3oz. She was beautiful and she amazed all the doctors. The first few weeks were great. She was growing and they even said she would likely go home and then around 4 months old, she would have her first open heart surgery. A week later, she got a staph infection and things started to make a turn for the worse. Her heart rate started to drop into the 40's(her normal heart rate was 60's while typically babies rates are 120-160). They decided to do a pacemaker. Things did not go well in surgery and she crashed. They worked on her for 30 minutes. Finally, they got her back and put her on the ECMO machine(heart and lung bypass). We took her off the machine on May 12, 2008 and she lived three days longer. She became an angel on May 15, 2008. Here we are early 30's having to bury our child. We thought no one should ever have to bury their children.

Ryan, our 3 year old, is what keeps us going. He is a typical 3 year old. He knows he has a sister, and "now she lives with the flowers"(cemetry). He didn't understand that she has left us, to go to heaven.

Your story brought tears to my eyes, my aunt lost her daughter to SIDS so I cannot even imagine how hard that must have been and still is, my thoughts are with you.